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Longford people urged to support Cystic Fibrosis Ireland on 65 Roses Day

...my mam was told I wouldn’t live past four or five years of age. Over the years, I have successfully campaigned for the drug ORKAMBI, been given compassionate access to Kaftrio and I have recently been incredibly lucky to have had a kidney transplant. So...

11 Apr 2023 at 17:14

Local News

Irish researchers to lead €3 million study on new cystic fibrosis medication

...to day lives, rather than in controlled clinical trial conditions. Kaftrio (known as TriKafta in the US) is a successor to ORKAMBI. The project, called RECOVER, has been awarded €2.85 million from Cystic Fibrosis Foundation (US), €112,000 from Cystic...

30 Jul 2020 at 16:00

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Longford parade to rival best Ireland has to offer

...the young Co Longford woman follows her heroic campaign to secure access for CF sufferers to the groundbreaking new drug, ORKAMBI. Despite illness Jillian have never shied away from the limelight and has been a tireless, patient advocate and only...

15 Mar 2018 at 12:00

Local News

Longford's Jillian McNulty named as 'Inspirational Role Model' for young women of Ireland

...for the past 11 years, and more specifically, she’s been campaigning for nation-wide access to the life-saving drug ORKAMBI. Jillian has won a national award The Hidden Hero's Triumph Over Adversity Award 2017 and the Longford Person Of The Year...

14 Apr 2018 at 17:13

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Alfie Evans supporters to gather in Longford

...Ann suffers from Cystic Fibrosis, and Ms Robinson campaigned hard to get the government to make the life-changing drug ORKAMBI available in Ireland. Fortunately, ORKAMBI was made available to cystic fibrosis sufferers last year. "I know as a mam...

26 Apr 2018 at 17:34

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'Inspirational Role Model' award for Longford's Jillian McNulty

...Mac Donncha at the Mansion House recently where Cystic Fibrosis Ireland (CFI) honoured her for the efforts made during the ORKAMBI campaign. And then to top it all off, Jillian found herself raising some much needed public awareness about organ donation...

28 Apr 2018 at 11:00

Local News

LISTEN: Longford Cystic Fibrosis sufferer Jillian McNulty humbled as four people offer to act as living kidney donors for her

...#chronickidneydisease pic.twitter.com/8jUlcCADiG — jillian mc nulty (@jilli09) April 5, 2018 This day last year ORKAMBI was approved! I campaigned for 2.5 years, it was hard work but I’d do it all again in the morning. Everyone with CF now has...

12 Apr 2018 at 22:55

Christmas In Longford

Slideshow: Some of your Christmas photos as Longford becomes beautiful winter wonderland

The snowfall over the past weekend provided many of you with the opportunity to submit your entry for the Longford Leader Christmas Photo Competition and we hope you enjoy this Slideshow selection of some of the entries we have received. Do you ...

11 Dec 2017 at 13:22

Local News

Longford Person of the Year Awards 2017

...campaigner, Jillian McNulty. The Cystic Fibrosis campaigner from Newtownforbes fronted the campaign to have the drug, ORKAMBI, made available here in Ireland, and her efforts came to a successful conclusion earlier this year. International ballet...

25 Sept 2017 at 16:00

Local News

Jillian and Sinead centre stage at Longford parade '18

...young Co Longford woman follows her heroic campaign to secure access for CF sufferers to the groundbreaking new drug, ORKAMBI. Despite illness Jillian have never shied away from the limelight and has been a tireless patient advocate and only...

04 Mar 2018 at 10:00

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Hidden Hearing Hero Award for Longford cystic fibrosis campaigner Jillian McNulty

...from CF and has campaigned for the rights of CF patients for the past 10 years. Recently she fought for the new drug ORKAMBI to be available to CF patients in Ireland. She led the media and political campaign, showing how ORKAMBI had...

14 Sept 2017 at 10:00

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Hero Award for Longford Campaigner, Jillian McNulty

11 Sept 2017 at 17:10

Years
2026

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Longford
Jillian McNulty

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