Cystic Fibrosis - Longford Live -

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Longford people! Pull on your festive knitwear and support Cystic Fibrosis Ireland's Christmas Jumper Day

With Ireland having the highest rates of CYSTIC FIBROSIS in the world and some of the most severe types of the disease, CYSTIC FIBROSIS Ireland have organised Christmas Jumper Day 4 CF on Friday, December 11th. The aim is to raise awareness and funds to help provide...

07 Dec 2020 at 18:00

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WATCH | Vote for Change: Longford mother and daughter take a stand outside RTE ahead of head to head debate

...that her daughter Gypsy has been "at the brunt" of the Fine Gael and Fianna Fáil governments all her life. The teenager has CYSTIC FIBROSIS, "which means we've been travelling up and down from the midlands for the past 17 years", Ms Robinson explained. "She's not...

04 Feb 2020 at 19:44

Covid-19

Longford Daffodil Day street collections cancelled by Irish Cancer Society over threat of coronavirus

...and Edgeworthstown. WATCH | Longford's Jillian McNulty: 'I haven't fought tooth and nail, every day of my life, to survive CYSTIC FIBROSIS and to be wiped out by coronavirus' Daffodil Day is the society's biggest fundraisers. It was scheduled to take place on...

11 Mar 2020 at 10:57

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Longford people invited to do Jerusalema for CF

With Covid-19 restrictions putting a stop to the annual Valentine’s Ball for CYSTIC FIBROSIS Ireland, organiser Jillian McNulty has had to come up with more creative ways to raise funds. Taking inspiration from An Garda Síochána, and teaming up with local...

17 Feb 2021 at 09:00

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Longford people urged to support 65 Roses Day

Longford people are being urged to support CYSTIC FIBROSIS Ireland’s annual fundraising day, “65 Roses Day”, taking place this Friday, April 8. The annual fundraising flag day – which derives its name from the way in which young children often first say the words...

06 Apr 2022 at 18:00

Deaths

Deaths in Longford - Monday, June 1, 2020

...can be viewed live on Wednesday at 11am on churchservices.tv/athlone Family flowers only, please, donations, if desired, to CYSTIC FIBROSIS Association of Ireland. Annette Mulryann-Walsh, Corbo, Kilrooskey, Roscommon / Edgeworthstown, Longford The death occurred,...

01 Jun 2020 at 03:24

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Guidance on cocooning to protect people over 70 years and those extremely medically vulnerable from Covid-19

...in the last 6 months, or who are still taking immunosuppression drugs people with severe respiratory conditions including CYSTIC FIBROSIS, severe asthma and severe COPD people with rare diseases and inborn errors of metabolism that significantly increase the...

28 Mar 2020 at 15:00

Longfordleader

Jillian hosts Longford's CF Valentine's Ball as it lights up the night sky

Having recently undergone a successful transplant surgery the 2017 Longford Person of the Year, Jillian McNulty hosted the charity ball to raise funds for the CF Ward at St Vincent's hospital and the St Damien’s Ward and Beaumont Hospital. Jillian ...

26 Feb 2023 at 09:02

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Jillian McNulty crowned Longford Person of the Year

...families who had been to the fore with her earlier this year as she campaigned for the availability of the breakthrough CYSTIC FIBROSIS drug, Orkambi. Acutely aware of the benefits of the drug Jillian threw herself into a campaign to get access for all...

18 Oct 2017 at 15:00

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Alfie Evans supporters to gather in Longford

...home." Hazel herself is no stranger to fighting for a child's healthcare. Her own teenage daughter Gypsy Ann suffers from CYSTIC FIBROSIS, and Ms Robinson campaigned hard to get the government to make the life-changing drug Orkambi available in Ireland....

26 Apr 2018 at 17:34

Local News

Irish researchers to lead €3 million study on new cystic fibrosis medication

...of Medicine and Health Sciences are leading a new €3 million study to investigate the real-world effects of the newest CYSTIC FIBROSIS medications as they become available. The research will look at how a new triple combination CYSTIC FIBROSIS drug, Kaftrio,...

30 Jul 2020 at 16:00

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Covid-19 Latest: 14 new cases in Longford but incidence rate is dropping

...cases; Jan 17 - 11 cases; Jan 18 - 4 cases ; Jan 19 - 11 cases ; Jan 20 - 14 cases). Also read: Longford mother calls for CYSTIC FIBROSIS patients to be higher on Covid vaccination list The total number of confirmed Covid-19 cases in Longford since the...

21 Jan 2021 at 21:15

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