All the updated news related to cystic fibrosis ireland

All the news related to cystic fibrosis ireland updated in real time

Found 16

forcystic fibrosis ireland

Order by:

Home

Longford people urged to support Cystic Fibrosis 65 Roses Day

Longford people are being urged to help Cystic Fibrosis Ireland meet its fundraising target of €300,000 on 65 Roses Day, taking place on Friday, April 12 nationwide. Volunteers will be out in force selling purple roses in Longford and across the ...

10 Apr 2024 at 10:06

Home

Iris's Longford stop on charity walk for Cystic Fibrosis Ireland

Walking from Mizen Head to Malin Head is a daunting journey. For the last two weeks Iris Murphy, a native of Manorhamilton who now lives in Riverstown, Sligo, has waned her way on the 600 kilometres trip. The unassisted solo walk from Mizen ...

12 Aug 2023 at 17:01

Home

Longford people invited to do Jerusalema for CF

With Covid-19 restrictions putting a stop to the annual Valentine’s Ball for Cystic Fibrosis Ireland, organiser Jillian McNulty has had to come up with more creative ways to raise funds. Taking inspiration from An Garda Síochána, and ...

17 Feb 2021 at 09:00

Features

Michael Carruth throws his hat in the ring for Malin2Mizen Cycle4CF 2019

With Ireland having the highest rates of cystic fibrosis in the world and some of the most severe types of the disease—over 1,300 people are living with cystic fibrosis here currently—Cystic Fibrosis Ireland (CFI) has launched their ...

09 Nov 2018 at 15:15

Features

Longford people show “Flower Power”
by wearing a purple rose on 65 Roses Day

The people of Longford are being urged to show their support for people living with cystic fibrosis (CF) and their families by wearing a purple rose on Cystic Fibrosis Ireland’s (CFI) 65 Roses Day, Friday 12th April. The annual ...

25 Mar 2019 at 16:36

Features

Christmas Jumper Day fundraiser for Cystic Fibrosis Ireland on December 14

06 Sept 2018 at 11:21

Features

Longford women encouraged to raise funds for Cystic Fibrosis Ireland by taking part in Vhi Mini Marathon

B*Witched and Dancing with The Stars’ Sinead O’Carroll joined forces with Zoe Woodward, and her two girls Emily (14) and Lana (12) who both have Cystic Fibrosis, as they launched Cystic Fibrosis Ireland’s annual One in 1,000 ...

26 Feb 2020 at 23:53

Home

'Inspirational Role Model' award for Longford's Jillian McNulty

Jillian was speaking to the Leader on Monday after the 2017 Longford Person of the Year was named as one of IMAGE Magazine's Seven Inspirational Role Models for young women in Ireland. Events The local CF campaigner was ...

28 Apr 2018 at 11:00

Local News

LISTEN: Longford Cystic Fibrosis sufferer Jillian McNulty humbled as four people offer to act as living kidney donors for her

Longford Cystic Fibrosis sufferer and campaigner, Jillian McNulty, was overwhelmed with emotion and shock when following an interview on The Ray D’Arcy Show, four people, strangers to her, got in touch offering to act ...

12 Apr 2018 at 22:55

Local News

Video: Terrified Longford mother to camp outside Dáil gates to highlight plight of Cystic Fibrosis sufferers

Hazel’s daughter Gypsy Ann suffers with Cystic Fibrosis (CF) and during one of Gypsy Ann's stays in Our Lady's Children's Hospital, Crumlin before last Christmas, her mother enlisted the help of high profile ...

08 Apr 2017 at 23:33

Home

Longford woman to spearhead third Orkambi protest outside Dáil Éireann

Another protest over the delays in securing approval for new ground-breaking drug Orkambi for people with Cystic Fibrosis in Ireland will be held at the gates of Dáil Éireann tomorrow, Wedsesday April 12 at ...

11 Apr 2017 at 13:53

Home

Longford campaigner Jillian McNulty ‘over the moon’ as life changing Orkambi to be made available to Cystic Fibrosis sufferers

Inspirational Jillian has been campaigning for almost three years for Orkambi, a campaign she dubbed on Twitter #mymiracle, to be made available and upon hearing this evening’s news, she enthused, “We ...

11 Apr 2017 at 21:16

Years
2025

Iconic Media is Ireland's largest independently owned regional newspaper and media group, with an unrivalled audience in print, online and mobile. We have 19 regional newspapers and 21 digital sites.

Iconic Digital Titles

Iconic Print Titles

Letterkenny Live

This publication supports the work of the Press Council of Ireland and Office of the Press Ombudsman, and our staff operate within the Code of Practice of the Press Council. You can obtain a copy of the Code, or contact the Council, at www.presscouncil.ie, Lo-call 1800 208 080 or email: info@presscouncil.ie.