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Longford people urged to support Cystic Fibrosis Ireland on 65 Roses Day

...my mam was told I wouldn’t live past four or five years of age. Over the years, I have successfully campaigned for the drug ORKAMBI, been given compassionate access to Kaftrio and I have recently been incredibly lucky to have had a kidney transplant. So...

11 Apr 2023 at 17:14

Local News

Irish researchers to lead €3 million study on new cystic fibrosis medication

...to day lives, rather than in controlled clinical trial conditions. Kaftrio (known as TriKafta in the US) is a successor to ORKAMBI. The project, called RECOVER, has been awarded €2.85 million from Cystic Fibrosis Foundation (US), €112,000 from Cystic...

30 Jul 2020 at 16:00

All Time Greats

Longford All Time Greats: Profile #14 Jillian McNulty

Jillian McNulty is well known in Longford and beyond for her heroic campaigning efforts to get ORKAMBI funded by the Irish government. Jillian herself suffers from Cystic Fibrosis and spends much of her time organising fundraising campaigns for Cystic...

22 Jan 2019 at 01:39

Features

Michael Carruth throws his hat in the ring for Malin2Mizen Cycle4CF 2019

...by respiratory failure. There are certain treatments which can provide some relief to patients of CF, such as the drug ORKAMBI, which was first made available to Irish patients in 2017, when the Minister of Health Simmon Harris struck a deal with...

09 Nov 2018 at 15:15

Local news

CF breakthrough for Jillian

...limits the progress of the disease. Jillian McNulty from Longford town is one of eight over-14s currently trialling the ORKAMBI drug combination in Ireland. “I’ve been trialling it since July of 2013 and since then the condition and my quality of life...

20 May 2015 at 13:30

Arts & Entertainment

Longford campaigner spearheads Valentine's Ball in aid of Cystic Fibrosis

...Longford cystic fibrosis campaigner Jillian McNulty Longford campaigner Jillian McNulty ‘over the moon’ as life changing ORKAMBI to be made available to Cystic Fibrosis sufferers

25 Jan 2018 at 12:00

Home

Longford parade to rival best Ireland has to offer

...the young Co Longford woman follows her heroic campaign to secure access for CF sufferers to the groundbreaking new drug, ORKAMBI. Despite illness Jillian have never shied away from the limelight and has been a tireless, patient advocate and only...

15 Mar 2018 at 12:00

Local News

Longford's Jillian McNulty named as 'Inspirational Role Model' for young women of Ireland

...for the past 11 years, and more specifically, she’s been campaigning for nation-wide access to the life-saving drug ORKAMBI. Jillian has won a national award The Hidden Hero's Triumph Over Adversity Award 2017 and the Longford Person Of The Year...

14 Apr 2018 at 17:13

Home

Alfie Evans supporters to gather in Longford

...Ann suffers from Cystic Fibrosis, and Ms Robinson campaigned hard to get the government to make the life-changing drug ORKAMBI available in Ireland. Fortunately, ORKAMBI was made available to cystic fibrosis sufferers last year. "I know as a mam...

26 Apr 2018 at 17:34

Home

'Inspirational Role Model' award for Longford's Jillian McNulty

...Mac Donncha at the Mansion House recently where Cystic Fibrosis Ireland (CFI) honoured her for the efforts made during the ORKAMBI campaign. And then to top it all off, Jillian found herself raising some much needed public awareness about organ donation...

28 Apr 2018 at 11:00

Local News

LISTEN: Longford Cystic Fibrosis sufferer Jillian McNulty humbled as four people offer to act as living kidney donors for her

...#chronickidneydisease pic.twitter.com/8jUlcCADiG — jillian mc nulty (@jilli09) April 5, 2018 This day last year ORKAMBI was approved! I campaigned for 2.5 years, it was hard work but I’d do it all again in the morning. Everyone with CF now has...

12 Apr 2018 at 22:55

Christmas In Longford

Slideshow: Some of your Christmas photos as Longford becomes beautiful winter wonderland

The snowfall over the past weekend provided many of you with the opportunity to submit your entry for the Longford Leader Christmas Photo Competition and we hope you enjoy this Slideshow selection of some of the entries we have received. Do you ...

11 Dec 2017 at 13:22

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