Boxing legend Michael Carruth will be in Donegal next May for the Malin2Mizen Cycle4CF
With Ireland having the highest rates of cystic fibrosis in the world and some of the most severe types of the disease—over 1,300 people are living with cystic fibrosis here currently—Cystic Fibrosis Ireland (CFI) has launched their Malin2Mizen Cycle4CF 2019 which takes place on Thursday May 9th - Sunday May 12th (www.cfireland.ie). The aim is to raise awareness and funds to help provide support and services for people with cystic fibrosis nationally. These include support grants for people with cystic fibrosis for exercise, transplant assessment, fertility treatment and counselling, as well as research and new healthcare facilities including a much required dedicated CF Unit at Beaumont Hospital.
Cystic Fibrosis is the most common life-threatening inherited disease in the country. CF causes the body to produce an unusually thick, sticky mucus which clogs the lungs and obstructs the pancreas, with the majority of deaths being caused by respiratory failure. There are certain treatments which can provide some relief to patients of CF, such as the drug Orkambi, which was first made available to Irish patients in 2017, when the Minister of Health Simmon Harris struck a deal with Vertex Pharmaceutical to introduce state-funded access to the "miracle drug". This came in the wake of numerous campaigns from the likes of Longford woman Jillian McNulty, who spent over 3 years campaigning for the introduction of Orkambi.
The 2018 Malin2Mizen Cycle4CF was held in memory of Lisa Dolan from Athlone who sadly passed away in May 2017. Lisa had cystic fibrosis and received a double lung transplant in 2016. It was a fitting tribute to Lisa that the 2018 cycle was held in her memory, as she encouraged people to sign up and take part in the Malin2Mizen Cycle4CF 2017. Lisa’s parents Seán and Rosie Dolan completed the 600+ km cycle from Malin to Mizen in May of this year. They got huge support in the Athlone area for their fundraising with the Malin2Mizen Cycle4CF 2018 raised an amazing €141,638.61.
Michael Carruth had thrown his weight behind the Malin2Mizen Cycle4CF 2019. Having come on board as an ambassador for the 2018 cycle, Michael has gone one step further for next year and signed up for the cycle in May. The four day cycle starts in Malin Head, County Donegal and finishes in Mizen Head, County Cork.
· Thursday 9th May: Malin Head to Bundoran (147km)
· Friday 10th May: Bundoran to Oranmore (172km)
· Saturday 11th May: Oranmore to Mallow (152km)
· Sunday 12th May: Mallow to Mizen Head (140km)
Speaking about the Malin2Mizen Cycle4CF, Michael called for people to register now for the cycle to help support people with Cystic Fibrosis in Ireland:
“The Malin2Mizen Cycle4CF 2019 takes places from Thursday, May 9th to Sunday, May 12th and I am putting my hat in the ring for this great event. I would like to say a huge thank you to Eurocycles on Longmile Road for providing me with a bike, all the gear and a training plan, so that I now cannot throw in the towel on Malin2Mizen Cycle4CF 2019. Seriously I am delighted to be taking part in this great event, raising awareness of cystic fibrosis and also raising much needed funds. In the 2018 cycle, 40 cyclists delivered a knock-out punch raising over €140,000 which helped fund grant payments for people with cystic fibrosis to help them with exercise, which is important for all of us, but can be a matter of life or death if you have cystic fibrosis. The funds also helped support the transplant team in the Mater, who do such an incredible job, performing life-saving double lung transplants for people with cystic fibrosis every year. I would encourage anyone who is interested in joining me for what promises to be a fantastic 4 days of cycling and a mighty bit of crack to register now on at www.cfireland.ie. Places are limited so sign up now! “
To take part in the Malin2Mizen Cycle4CF, register now at www.cfireland.ie. The fundraising target for participation in the cycle is €2,000 which covers your food and accommodation over the 4 day cycle. Registration closes on January 25th.
To support the Malin2Mizen Cycle4CF and help people with Cystic Fibrosis in Ireland you can donate online at www.cfireland.ieor text "HELPCF" to 50300 to donate €2 [100 per cent of a donation goes to Cystic Fibrosis Ireland across most network operators. Some operators apply VAT which means that a minimum of €1.63 will go to Cystic Fibrosis Ireland. Service Provider: LIKECHARITY. Helpline: 0766805278.]
Fergal Smyth, Cystic Fibrosis Ireland, firstname.lastname@example.org, 01 496 243