Cystic Fibrosis - Longford Live -

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Jillian hosts Longford's CF Valentine's Ball as it lights up the night sky

Having recently undergone a successful transplant surgery the 2017 Longford Person of the Year, Jillian McNulty hosted the charity ball to raise funds for the CF Ward at St Vincent's hospital and the St Damien’s Ward and Beaumont Hospital. Jillian ...

26 Feb 2023 at 09:02

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Alfie Evans supporters to gather in Longford

...home." Hazel herself is no stranger to fighting for a child's healthcare. Her own teenage daughter Gypsy Ann suffers from CYSTIC FIBROSIS, and Ms Robinson campaigned hard to get the government to make the life-changing drug Orkambi available in Ireland....

26 Apr 2018 at 17:34

Local News

Irish researchers to lead €3 million study on new cystic fibrosis medication

...of Medicine and Health Sciences are leading a new €3 million study to investigate the real-world effects of the newest CYSTIC FIBROSIS medications as they become available. The research will look at how a new triple combination CYSTIC FIBROSIS drug, Kaftrio,...

30 Jul 2020 at 16:00

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‘We'll forever be in lockdown if people aren't vaccinated’ says Longford's Jillian McNulty

...blood clotting events” in adults, the AstraZeneca vaccine has been temporarily deferred by the Irish government. Local CYSTIC FIBROSIS campaignr, Jillian McNulty, who received the vaccine on Friday last said that the suspension of the vaccine is “a major...

16 Mar 2021 at 18:00

Features

Michael Carruth throws his hat in the ring for Malin2Mizen Cycle4CF 2019

With Ireland having the highest rates of CYSTIC FIBROSIS in the world and some of the most severe types of the disease—over 1,300 people are living with CYSTIC FIBROSIS here currently—CYSTIC FIBROSIS Ireland (CFI) has launched their Malin2Mizen Cycle4CF 2019 which...

09 Nov 2018 at 15:15

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Longford's CF champion Jillian McNulty starting to recover in ICU

Social media was flooded with well wishes, prayers and messages of support for local CYSTIC FIBROSIS campaigner Jillian McNulty who spent the festive season fighting for recovery in intensive care. Jillian is now starting to come to after her ordeal but the...

02 Jan 2020 at 11:00

Deaths

Deaths in Longford: Saturday, April 7, 2018

...Funeral Mass at 1pm followed by burial in the adjoining cemetery. Family flowers only please, donations if desired, to CYSTIC FIBROSIS, Cavan or Multiple Sclerosis, Ireland, c/o Connell Funeral Directors or any family member.

07 Apr 2018 at 13:19

Local News

ANSWERED: Should you send your child with a health condition back to school?

... This category includes the over-70s, transplant recipients and those with severe respiratory conditions including CYSTIC FIBROSIS and severe asthma. "It also includes people with cancer undergoing chemotherapy; undergoing radiotherapy for lung cancer;...

02 Sept 2020 at 23:00

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VIDEO: Longford Cystic Fibrosis campaigner 'over the moon' as Orkambi funding given green light by government

The local woman has been to the fore of the campaign to have the life saving drugs funded by the Government for the last two and a half years. And, on Tuesday evening her dreams came true! "I am delighted; over the moon," she said. "I just can't ...

13 Apr 2017 at 17:31

Local notes

Dromard

... Voluntary donations would be very much appreciated. Your support will be very much appreciated by all involved. CYSTIC FIBROSIS The Cavan CYSTIC FIBROSIS branch and myself Pauline Galvin would like to thank the ladies who took part in the Flora Mini...

12 Jul 2014 at 12:55

National News

Make-A-Wish Ireland cancel their fundraising events as confirmed Coronavirus cases increase

...that the work of Make-A-Wish can happen, granting wishes to children who have life threatening illnesses like cancer, CYSTIC FIBROSIS and heart conditions. The charity receive no government funding, and "rely entirely on the generosity of the general...

11 Mar 2020 at 13:51

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Longford woman spearheads march for Orkambi outside Dáil Eireann

...was “quite patronising”. “Do you not realise this is actually a matter of life and death? Myself and approximately 550 CYSTIC FIBROSIS patients in Ireland are waiting on Orkambi to be made available. People have lost their lives waiting, more people WILL...

21 Nov 2016 at 12:06

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