Cystic Fibrosis - Longford Live -

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Longford people! Pull on your festive knitwear and support Cystic Fibrosis Ireland's Christmas Jumper Day

With Ireland having the highest rates of CYSTIC FIBROSIS in the world and some of the most severe types of the disease, CYSTIC FIBROSIS Ireland have organised Christmas Jumper Day 4 CF on Friday, December 11th. The aim is to raise awareness and funds to help provide...

07 Dec 2020 at 18:00

Covid-19

Longford Daffodil Day street collections cancelled by Irish Cancer Society over threat of coronavirus

...and Edgeworthstown. WATCH | Longford's Jillian McNulty: 'I haven't fought tooth and nail, every day of my life, to survive CYSTIC FIBROSIS and to be wiped out by coronavirus' Daffodil Day is the society's biggest fundraisers. It was scheduled to take place on...

11 Mar 2020 at 10:57

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Longford people urged to support 65 Roses Day

Longford people are being urged to support CYSTIC FIBROSIS Ireland’s annual fundraising day, “65 Roses Day”, taking place this Friday, April 8. The annual fundraising flag day – which derives its name from the way in which young children often first say the words...

06 Apr 2022 at 18:00

Deaths

Deaths in Longford - Monday, June 1, 2020

...can be viewed live on Wednesday at 11am on churchservices.tv/athlone Family flowers only, please, donations, if desired, to CYSTIC FIBROSIS Association of Ireland. Annette Mulryann-Walsh, Corbo, Kilrooskey, Roscommon / Edgeworthstown, Longford The death occurred,...

01 Jun 2020 at 03:24

Longfordleader

Jillian hosts Longford's CF Valentine's Ball as it lights up the night sky

Having recently undergone a successful transplant surgery the 2017 Longford Person of the Year, Jillian McNulty hosted the charity ball to raise funds for the CF Ward at St Vincent's hospital and the St Damien’s Ward and Beaumont Hospital. Jillian ...

26 Feb 2023 at 09:02

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Alfie Evans supporters to gather in Longford

...home." Hazel herself is no stranger to fighting for a child's healthcare. Her own teenage daughter Gypsy Ann suffers from CYSTIC FIBROSIS, and Ms Robinson campaigned hard to get the government to make the life-changing drug Orkambi available in Ireland....

26 Apr 2018 at 17:34

Local News

Irish researchers to lead €3 million study on new cystic fibrosis medication

...of Medicine and Health Sciences are leading a new €3 million study to investigate the real-world effects of the newest CYSTIC FIBROSIS medications as they become available. The research will look at how a new triple combination CYSTIC FIBROSIS drug, Kaftrio,...

30 Jul 2020 at 16:00

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Covid-19 Latest: 14 new cases in Longford but incidence rate is dropping

...cases; Jan 17 - 11 cases; Jan 18 - 4 cases ; Jan 19 - 11 cases ; Jan 20 - 14 cases). Also read: Longford mother calls for CYSTIC FIBROSIS patients to be higher on Covid vaccination list The total number of confirmed Covid-19 cases in Longford since the...

21 Jan 2021 at 21:15

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‘We'll forever be in lockdown if people aren't vaccinated’ says Longford's Jillian McNulty

...blood clotting events” in adults, the AstraZeneca vaccine has been temporarily deferred by the Irish government. Local CYSTIC FIBROSIS campaignr, Jillian McNulty, who received the vaccine on Friday last said that the suspension of the vaccine is “a major...

16 Mar 2021 at 18:00

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Longford campaigner Jillian McNulty ‘over the moon’ as life changing Orkambi to be made available to Cystic Fibrosis sufferers

...was also scheduled for tomorrow (Wednesday, April 12). “We have it. I’m so happy,” said a thrilled Jillian this evening. CYSTIC FIBROSIS Ireland has also welcomed the news of an agreement, saying Orkambi will benefit around 550 patients and Kalydeco will...

11 Apr 2017 at 21:16

Features

Michael Carruth throws his hat in the ring for Malin2Mizen Cycle4CF 2019

With Ireland having the highest rates of CYSTIC FIBROSIS in the world and some of the most severe types of the disease—over 1,300 people are living with CYSTIC FIBROSIS here currently—CYSTIC FIBROSIS Ireland (CFI) has launched their Malin2Mizen Cycle4CF 2019 which...

09 Nov 2018 at 15:15

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Longford's CF champion Jillian McNulty starting to recover in ICU

Social media was flooded with well wishes, prayers and messages of support for local CYSTIC FIBROSIS campaigner Jillian McNulty who spent the festive season fighting for recovery in intensive care. Jillian is now starting to come to after her ordeal but the...

02 Jan 2020 at 11:00

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