All the updated news related to Hazel Robinson

All the news related to Hazel Robinson updated in real time

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Longford campaigner Jillian McNulty ‘over the moon’ as life changing Orkambi to be made available to Cystic Fibrosis sufferers

Inspirational Jillian has been campaigning for almost three years for Orkambi, a campaign she dubbed on Twitter #mymiracle, to be made available and upon hearing this evening’s news, she enthused, “We finally have Orkambi. I’m over the moon. Finally,...

11 Apr 2017 at 21:16

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VIDEO: Longford mother and CF campaigner sends emotional message to Health Minister Simon Harris - All we want for Christmas is Orkambi

For the past four years, CF sufferer Gypsy has spent Christmas in Crumlin hospital and this year alone, she has spent eight months in hospital. Mum Hazel firmly believes if her 14-year-old daughter could gain access to the drug Orkambi that it ...

11 Dec 2016 at 22:20

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Vera Twomey addresses Longford Says Yes to Medical Cannabis meeting

These were the words expressed by medical cannabis campaigner Vera Twomey who was speaking about her ordeal after being forced to travel to Holland to obtain the medicine for her daughter Ava who suffers from seizures, during tonight’s ...

08 May 2018 at 23:52

Local News

Video: Terrified Longford mother to camp outside Dáil gates to highlight plight of Cystic Fibrosis sufferers

Hazel’s daughter Gypsy Ann suffers with Cystic Fibrosis (CF) and during one of Gypsy Ann's stays in Our Lady's Children's Hospital, Crumlin before last Christmas, her mother enlisted the help of high profile personalities Brendan ...

08 Apr 2017 at 23:33

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Parents of children with Cystic Fibrosis to hold candlelight vigil in Longford

The event is part of a national campaign urging the HSE and the Minister for Health to make the drug Orkambi available to those who have the disease. One of the organisers of the candlelight vigil is Drumlish woman Hazel ...

17 Feb 2017 at 15:12

Local News

People Before Profit holding public meeting in Longford

The meeting will take place at equine charity shop Hungry Horse Outside, Hibernian Court, Longford. Hazel Robinson explained, "PBP are holding a public introductory meeting along with a questions and answers sessions ...

12 Jun 2017 at 16:01

Jobs

People power to the fore at PBP meeting in Longford

Ms Robinson highlighted the many social problems that she believed exist in Longford town and said the time had come for people power to grow in this county. “We have no support systems in this town and I am hoping ...

24 Jun 2017 at 15:00

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