Zoe Cryan pictured on the Lough Ree Access for All boat
A major fundraising campaign is underway in Roscommon and beyond to raise money for the Zoe Cryan Trust Fund, in the hopes of improving the quality of life for seven-year-old Zoe Cryan, who was born extremely premature at 24 weeks.
Weighing only 540grams when born, Zoe spent 272 days in The Coombe/Our Lady’s Crumlin Hospital before she could go home to her parents, Siobhán and Dave.
Since Zoe’s birth in 2014, it has been a rollercoaster for her and her parents but through it all she has been the most determined, strong and loving little girl.
Zoe has a diagnosis of Cerebral Palsy, which presents differently with each person. For Zoe, it has affected her legs, feet, core and her oral functions.
Zoe uses her wheelchair full time and walks short distances with the aid of her k-walker. Unfortunately over the past 18 months, Zoe’s feet have deteriorated and she requires intensive Physio and specific Braces to help her feet and legs, which she can't access here in Ireland.
Until last June, Zoe was 100% peg fed and her parents have worked extremely hard to support her swallowing pureed food.
Now she only requires her peg for water and meds.
This change only happened with the help of a Centre in Boston, NAPA, where Zoe and her parents attended in 2019. Their therapists worked with Zoe for three weeks on her swallowing through a device called Vital stimulation. This had life-changing benefits for Zoe but she still requires intensive specialised therapy in order to chew foods and swallow in safe way.
Her parents are also hoping that, with intensive therapy, her speech will become clearer and allow her to communicate with her friends and family fully.
This type of service isn't available to Zoe here in Ireland and so she needs to travels back to Napa to give Zoe every opportunity possible.
To raise funds for Zoe, pianist Leanne Anastasi, director of Ballinagare Piano will perform for 24 hours ‘non-stop’ at Kilmurry Hall, Castlerea from Saturday, March 5 at 8pm.
There will be face painting and balloons by Fierce Fun Faces on Sunday between 12pm and 3pm, and refreshments will be sold throughout the event, with proceeds going towards Zoe’s Wish to Chew & Chat.
Anyone who would like to donate via GoFundMe can do so by searching Zoe’s Wish to Chew and Chat. Zoe’s family has already raised over €23,000 of their €35,000 goal but any donation at all would be beyond appreciated and help get Zoe on her way to Chewing and Chatting.
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