All the updated news related to rare disease

All the news related to rare disease updated in real time

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Longfordleader

Longford pupils show their colours on Rare Disease Day

Above: The pupils of St Matthew's National School, Ballymahon sending out the message 'We Support Rare Disease Day' during a recent non-uniform day at the school to highlight and generate awareness of Rare Disease Day (Tuesday, February 28, 2023). ...

19 Mar 2023 at 09:02

National News

Only 13% of people aware of rare disease could correctly identify condition

Only 13% of people who claim to have an awareness of the term “rare disease” could correctly identify a condition, a survey has revealed. The results of the survey reveal a disparity between awareness and understanding of rare diseases in Ireland....

07 Feb 2024 at 15:16

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Longford school showing their colours for Rare Disease Day

Tomorrow building's across the globe will light up in blue, green and pink to bring attention to the plight of millions of rare disease sufferers across the world. the pupils of one Longford school will also do their part. Rare Disease Day is a ...

27 Feb 2023 at 19:53

Letters

Letter to the Longford Leader editor: We must ensure that those with rare conditions get the appropriate treatment

Rare Diseases Ireland, the national alliance for rare disease voluntary groups, recently published some research among people with rare diseases, their family members and their carers. It found that nearly three quarters of respondents are ...

08 Jun 2020 at 08:02

National News

Expansion of newborn screening scheme ‘frustratingly slow’, official says

The Health Minister was unable to provide a date for when additional rare diseases will be added to a newborn screening programme, after an advocate expressed “disappointment” with the rate of progress. Minister Jennifer Carroll MacNeill ...

27 Aug 2025 at 15:57

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Rare Disease Day

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