Search
23 Oct 2025
Search
23 Oct 2025
Please allow ads as they help fund our trusted local news content.
Kindly add us to your ad blocker whitelist.
If you want further access to Ireland's best local journalism, consider contributing and/or subscribing to our free daily Newsletter .
Support our mission and join our community now.
To continue reading this article, you can subscribe for as little as €0.50 per week which will also give you access to all of our premium content and archived articles!
Alternatively, you can pay €0.50 per article, capped at €1 per day.
Thank you for supporting Ireland's best local journalism!
A Longford man braved one of Ireland's toughest mountain races to help raise money for people battling the rare and very painful skin condition EB, also known as butterfly skin.
David Manser, Keenagh, took part in the tenth annual DEBRA Ireland Wicklow Mountains Challenge half marathon.
Debra Ireland supports people living with EB (epidermolysis bullosa), an incredibly painful skin condition that causes the skin layers and internal body linings to blister and wound at the slightest touch.
The event attracts everyone from triathletes in the half marathon to those who have never run an off-road race before with many wearing an EB butterfly tattoo on their faces in support of patients living with this condition.
EB is a distressing and painful genetic skin condition causing the skin layers and internal body linings to separate and blister at the slightest touch.
It affects approximately 1 in 18,000 babies born and can range from mild to severe. Severe forms can be fatal in infancy or lead to dramatically reduced life expectancy, due to a range of complications from the disease.
Patients need wound care and bandaging for up to several hours a day and the condition tends to become increasingly debilitating and disfiguring over time.
Adult patients with severe forms are also extremely susceptible to an aggressive form of skin cancer. There are currently no treatments or cure for EB.
For more information see www.debraireland.org or text BUTTERFLY to 50300 to donate €4 to Debra Ireland.
Subscribe or register today to discover more from DonegalLive.ie
Buy the e-paper of the Donegal Democrat, Donegal People's Press, Donegal Post and Inish Times here for instant access to Donegal's premier news titles.
Keep up with the latest news from Donegal with our daily newsletter featuring the most important stories of the day delivered to your inbox every evening at 5pm.
This publication supports the work of the Press Council of Ireland and Office of the Press Ombudsman, and our staff operate within the Code of Practice of the Press Council. You can obtain a copy of the Code, or contact the Council, at www.presscouncil.ie, Lo-call 1800 208 080 or email: info@presscouncil.ie.
