Longford mother and Cystic Fibrosis campaigner to speak at Mullingar meeting

Longford mother and Cystic Fibrosis campaigner to speak at Mullingar meeting

Longford mother and Cystic Fibrosis campaigner Hazel Robinson is set to speak at a public meeting taking place tomorrow, Saturday in Mullingar’s Greville Arms Hotel.

Fronted by Sligo man James Conway, the event will be live-streamed online to reach a wider audience.

James’ video, where he expressed vehement opposition to the Government’s decision to waive Apple’s bill of up to €13 billion in unpaid tax benefits, went viral in recent days.

His beliefs that Irish people don’t want to emigrate but are often forced to, struck a chord with almost two million people who have watched the video since it was posted on September 21.

At tomorrow evening's meeting, Hazel will speak about her life and the life of her 14-year-old daughter, Gypsy - who was diagnosed with Cystic Fibrosis at birth - since the decision to fund the life-saving drug Orkambi was refused on the basis of its high cost. 

Following that decision, Hazel set up a petition to have the drug funded, which has racked up over 37,500 signatures to date. Sadly, in the intervening months there has been no change and Gypsy’s condition has deteriorated.

Hitting out at the Government for not claiming the money back in favour of funding a drug to keep Irish citizens alive Hazel added; “It’s infuriating to watch your child suffer.”

Since Gypsy now spends a lot of her time at Our Ladies Children’s Hospital, Crumlin, Hazel revealed that she has purchased a caravan and settled it at a nearby campsite in order to be near both Gypsy and her two young sons, Tyler (3) and Theo (1).

Sharing James’ beliefs that the Government “don’t care about the everyday person,” Hazel added; “We’re hoping that this [public meeting] is going to be a big movement…

“We’re doing it out of genuine concern.”

The public meeting takes place at 7pm in the Greville Arms Hotel.